CUH Logo

Mobile menu open

Lactose intolerance in children and young people

Patient information A-Z

Introduction

This information leaflet is intended for children and young people who have, or are suspected to have, lactose intolerance. This information is not for those with cow's milk protein allergy.

About lactose intolerance

What is lactose intolerance?

Lactose is the natural sugar found in milks, such as cow's milk, goat's milk and breast milk. It is usually broken down (digested) in the gut by an enzyme called lactase before it is absorbed. In lactose intolerance, people do not have enough of this enzyme. When they eat foods containing lactose, it causes symptoms such as wind, bloating, abdominal pain, nausea and diarrhoea.

Some people naturally produce less of this enzyme as they get older (primary intolerance). Others develop lactose intolerance due to damage and irritation of the gut (secondary intolerance). For example, some may develop it after having a gastroenteritis infection.

What is the difference between lactose intolerance and cow's milk protein allergy?

In cow's milk protein allergy, the body reacts to the protein in cow's milk rather than the lactose. It can cause immediate symptoms such as a skin rash, difficulty breathing or delayed symptoms such as diarrhoea, vomiting or blood in the stool.

Those with a cow's milk protein allergy cannot eat specialised lactose free products as they still contain dairy protein. If you feel that you / your child has cow's milk protein allergy, please discuss this with your healthcare professional.

How is lactose intolerance diagnosed?

Lactose intolerance is often diagnosed by strictly removing all lactose from the diet for two weeks. If the symptoms improve, lactose is then put back in to the diet and if the symptoms return the diagnosis is made. If the symptoms do not improve, you should speak to your healthcare professional as you or your child are unlikely to have lactose intolerance.

How is lactose intolerance normally treated?

Lactose intolerance is treated by avoiding lactose in the diet.

Secondary intolerance (often following a gastroenteritis infection) is mainly temporary. Lactose is avoided for two to four weeks while the gut recovers, and then a normal diet can be reintroduced.

Those with a primary lactose intolerance (who do not produce enough of the enzyme lactase) will need to permanently reduce the lactose in their diet. Once the diagnosis is made, small amounts may be tolerated – see below on 'individual tolerance'.

Lactose-free diet

Lactose is found in cow’s milk; therefore any products containing milk will also contain lactose, and should be avoided. Lactose-free alternatives are available, such as lactose-free cheese, yoghurt and milk, which, although they are made from cow's milk, the lactose has been removed. These are readily available and are safe to use, although the label will still state that the food contains cow's milk.

Milk is often used as an ingredient in manufactured foods. Common foods containing milk include biscuits, bread, crisps, processed meats, desserts and sauces. The ingredients list should be checked to see whether the food is suitable to eat.

Food labelling laws require all pre-packed foods for sale within the UK and EU, containing milk, to be highlighted in the ingredients list. This may be in bold, underlined or in italics. Foods sold loose (such as from a delicatessen or bakery) must have a list of ingredients available on request. Remember that foods sold outside the UK and EU do not have to comply with these laws.

Avoid foods containing the following ingredients (unless you are buying a specially made lactose-free product):

  • cow’s milk/ evaporated milk/ condensed milk
  • non-fat milk solids/ milk sugar solids/ milk powder/ milk solids
  • casein/ caseinates/ milk protein
  • whey/ whey syrup sweetener
  • lactose
  • butter/ margarine/ ghee
  • cream, cheese and yoghurt
  • buttermilk

Some medicines, vitamin supplements, toothpastes and mouthwashes contain lactose (check the information leaflet).

Some food ingredients sound like they contain lactose but do not. These include the following:

  • Lactic acid E270
  • Stearoyl lactylates
  • Sodium lactate E325
  • Glucona-delta-lactone
  • Potassium lactate E325
  • Calcium lactate E327
  • Cocoa butter

May contain traces of milk

Some manufactured products state that they may contain traces of milk, but do not contain milk on the ingredients list. These products do not need to be avoided on a lactose-free diet.

Non-urgent advice: Suitable foods

Milks

Children under one year old: SMA LF, Aptamil lactose free

Children over one year old: Lactose free cow's milk, such as Just Milk 'Lactose Free', Arla 'Lactofree' Tesco ‘Lactose Free Dairy Milk’, Sainsbury’s ‘Everyday lactose free milk’, Aldi Cowbelle ‘Lactose free milk’

Non-dairy milk alternatives

These are suitable as a main drink for children over two years. They can be used in cooking from six months of age. Choose calcium enriched types. Examples include:

  • soya milk
  • coconut milk
  • oat milk
  • nut milks, e.g. hazelnut, cashew, almond
  • pea milk
  • potato milk

Rice milk should not be used in children under five years.

Choose milks with added calcium, iodine, vitamin B12.

Nut milks are lower in energy and protein when compared to cow’s milk, so opt for oat and soya milk if offering as a main drink alternative.

Enriched milk alternatives have an energy and nutrient content closer to full fat cow’s milk. They are therefore suitable from 1 year of age. Examples include:

  • Alpro Soya ‘Growing up milk 1-3years+’
  • Oatly Barista edition
  • Oatly Oat drink ‘whole’
  • MOMA Oat ‘whole’
Cheese

Lactose free cheese, e.g. Arla Lactofree, Philadelphia lactose free, Waitrose lactose free halloumi

Vegetable-based cheeses. Brands include Violife, Sheese, Vegusto, VBites, Koko and supermarket own brand cheeses. Choose calcium-enriched types where possible.

Creams/ Whiteners

Lactose free cream, e.g. Arla ‘Lactofree Cream’

Non dairy alternatives to cream e.g. Oatly ‘Creamy Oat Fraiche’, Oatly ‘Creamy Oat Single Cream’, Food Heaven ‘Whipped Spray Cream Vegan’, Provamel ‘Organic soya alternative to single cream’, Alpro Single Soya, Elmlea Plant

Fats/ oils

Lactose free margarines e.g. Arla ‘Lactofree Spreadable’

Dairy free margarines e.g. Pure, Koko, Vitalite, Flora Plant, Lurpak Plant Based

Lard, suet, dripping, vegetable oils

Yoghurts and desserts

Lactose free yoghurts e.g. Arla ‘Lacto-free’, Rachel’s Organic ‘Lactosefree’, Muller Corner ‘Lactose Free’, ASDA ‘Lactose Free’, Tesco ‘Lactose Free’

Soya yoghurt, soya desserts, soya rice pudding e.g. Alpro, Provamel Yofu, supermarket own brand

Dairy and soya free yoghurts and desserts. Brands include Co-Yo, Koko, Oatly , Supermarket own brands, The Coconut Collab. Choose calcium-enriched types where possible

Sorbet

Dairy-free ice cream. Brands who produce such foods include Swedish Glace, Breyers Delights non dairy, Booja-Booja, Alpro, Magnum (vegan), Whole Creations, Yorica, The Coconut Collab, Ben and Jerry’s (non-dairy ice cream), Halo Top dairy free, Supermarket own brands

Jelly, homemade jellies made with water or a suitable milk

Some custard powders (check ingredients list) made with a suitable milk or soya custard

Homemade tapioca, sago, semolina or rice pudding made with a suitable milk

Breakfast cereals

Cornflakes, Crunchy Nut Corn Flakes, Frosties, Coco Pops, Rice Krispies, Weetabix, Shredded Wheat, Honey Loops, Ready Brek (original and honey), porridge oats

Cereals, flour and cereal products

All varieties of flour, cornflour, arrowroot, baking powder, pasta, rice, sago, semolina, tapioca, spaghetti, rice noodles, egg noodles

Some breads (white, brown and wholemeal), rice cakes, crackerbreads, crackers and rye crispbreads (check ingredients labels)

Homemade biscuits, cakes and puddings using lactose free ingredients or manufactured dairy free versions

Ginger nuts, rich tea, jammie dodgers, party rings (check ingredients label)

Meat, fish, chicken and alternatives

All varieties prepared and cooked without milk

Quorn, tofu

Soya products e.g. mince, burgers, sausages, nuggets (check ingredients labels)

Pulses e.g. red kidney beans, chickpeas, butter beans, cannelloni beans

Lentils

Eggs

All forms of egg (made without added milk, e.g. boiled, poached, fried).

Vegetables

All fresh, frozen or tinned without butter.

Oven chips (check labels).

Baked beans (check labels).

Fruit

All fruits (fresh/ frozen/ dried/tinned in juice or syrup).

Fruit in jelly

Fruit juice

Nuts

Fresh and plain salted nuts (whole nuts are not suitable for children under five years). Peanut and tree nut butters

Snacks

Some plain potato crisps, puffed wheat and corn snacks, prawn crackers, oatcakes (check ingredients labels)

Plain sweet and salted popcorn

Plain pretzels and Twiglets

Homemade guacamole

Pepperami

Olives

Hummus

Some cereal bars e.g. Jordan’s Frusli bars; Fruitus organic fruit and cereal bars, specific Nature Valley bars (e.g. oat & honey crunchy granola bar), Nākd bars

Preserves and confectionery

Sugar, glucose, jam, honey, syrup treacle, marmalade

Some brands of plain (dark) chocolate

Some brands of carob or soya bars, vegan and ‘free from’ chocolate (check labels).

Boiled sweets, lollipops, pastilles, gums, jelly tots, peppermints, softmints, chewy fruit sweets e.g. Fruitella, marshmallows

Drinks

Plain tea and coffee

Nesquik powder, Crusha syrup, some cocoa powders (made up with suitable milk) (check ingredients labels)

Squashes, fizzy drinks, fresh fruit juices, fruit smoothies (check ingredients labels)

Soups, sauces and gravies

Home-made soups, sauces and gravies made using milk-free ingredients

Certain brands of soups, sauces, gravies (check ingredients labels)

Some tomato ketchups, brown sauces, mustards, pickles, chutneys, mayonnaise, salad cream (check ingredients labels)

Miscellaneous

Salt, pepper, herbs, spices, vinegar, mustard, mustard powder, bicarbonate of soda, cream of tartar, baking powder, yeast, colourings, essences, gelatine, monosodium glutamate

Bovril, Marmite, Vegemite

Dairy free chocolate spread e.g. Nutella plant based, Sweet Freedom, JimJams, Valsoia plant based, Plamil

Non-urgent advice: Unsuitable foods

Milks and dairy foods

Standard infant formula, cow's, goat’s and sheep’s milk. Fresh, dried, condensed, evaporated, and skimmed cow’s milk.

Cheese

All types of dairy cheese and cheese spreads

Creams/ Whiteners

Single cream, double cream, vegetable fat ‘creams’ such as Elmlea.

Coffee whiteners, for exapmle ‘Coffeemate’, ‘Coffee Compliment’.

Fats/ oils

Butter, margarine and spreads containing milk.

Hydrogenated vegetable oils may contain milk – please check ingredients.

Yoghurts and desserts

Yoghurt, fromage frais, crème fraiche, dairy ice cream, milk chocolate desserts

Dairy desserts e.g. custard, mousse, instant whips, trifle, Angel Delight, rice pudding, tapioca

Instant custard powder

Custard tarts

Breakfast cereals

Some brands of breakfast cereals, muesli and chocolate-flavoured cereals (check ingredient labels).

Yoghurt coated cereals, instant porridge.

Cereals, flour and cereal products

Pasta dishes with sauces containing milk e.g. lasagne, some bolognese and moussaka sauces, macaroni cheese

Milk loaf, croissants, brioche, buns

Biscuits, cakes, cake mixes and puddings made with milk or milk-containing ingredients (check ingredients labels)

Pastry (check ingredients labels), quiche

Crackers containing cheese, e.g. cheddars, rice cakes containing chocolate or cheese

Meat, fish, chicken and alternatives

Meat, fish or poultry products which contain milk derivatives e.g. pre-packed ham, chicken

Some meat, fish or poultry in batter, crumbs or sauce (check ingredients labels)

Certain brands of sausages, tinned meat (check ingredients labels)

Eggs

Eggs made with milk, for example scrambled or omelette.

Eggnog.

Vegetables

Vegetables canned in sauce containing milk or pre-packed in butter.

Instant potato, waffles, potato shapes, some flavoured potato crisps which often contain milk powder.

Potato salad, vegetable salad, coleslaw (check labels).

Fruit

Fruit yoghurt, fruit tarts or flans.

Yoghurt-coated dried fruit.

Nuts

Some dry-roasted and flavoured nuts (check ingredient labels).

Yoghurt-coated nuts.

Snacks

Most flavoured potato crisps, pretzels, puffed wheat and corn snacks containing milk (check ingredients labels)

Toffee popcorn

Cheese flavoured snacks e.g. ‘Cheddars’,

‘Wotsits’, cheese straws, pretzels, crackers

Manufactured dips e.g. guacamole, cheese and chive, sour cream

Yoghurt coated cereal bars/snack bars

Preserves and confectionery

Lemon curd (check label).

Toffee, fudge, caramels, butterscotch, some sweets (check labels).

Milk and white chocolate.

Most brands of plain/ dark chocolate.

Most confectionery bars.

Drinks

Coffee and coffee mixes, with added milk e.g. cappuccino, lattes

Babychino

Malted drinks e.g. Horlicks, Bournvita, Ovaltine, Milo

Drinking chocolate, hot chocolate (check ingredients labels)

Milkshakes, milkshake powders, yoghurt drinks

Soups, sauces and gravies

Soups, sauces, mayonnaise, gravies made with milk derivatives such as pesto, cook in sauces, curry sauces, marinades, cream sauces, gravy granules (check labels).

Miscellaneous

Medications or vitamin and mineral supplements containing lactose (check labels).

Low calorie sweeteners containing lactose, e.g. Sweet ‘n’ Low, Canderel tablets

Monosodium glutamate with lactose filler bought as a powder for Chinese cooking

Please note: All branded products are lactose free at the time of printing, however ingredients do change over time, therefore please continue to check the labels.

This is also not an exhaustive list and products can change frequently so please do look in your local supermarkets for additional suitable products. Detailed information on manufactured products can be obtained from the customer services department of most supermarkets.

Milk substitutes

Breast milk contains lactose. If your child is breastfeeding and your child has been advised to follow a lactose fee diet, you should seek advice from your health professional.

Formula-fed infants, under one year, should be given a lactose-free formula, such as SMA LF and Aptamil Lactose Free. These can be bought in pharmacies and supermarkets and do not require a prescription.

Lactose-free cow's milk is suitable for children over one year of age and young people. It is the preferred alternative as it contains the same level of energy, vitamins and calcium as standard cow's milk.

Other milk substitutes can be used, such as soya milk and oat milk, in those over two years of age if preferred (enriched versions from 1 year – see milks section in table above). Rice milk is a suitable substitute for children over the age of five years. It is recommended that you choose one which is calcium and vitamin enriched.

Guidance on the reintroduction of lactose

You may be advised to reintroduce lactose as part of the process of diagnosing the condition. If you or your child has secondary lactose intolerance, you may be advised to reintroduce lactose after six to eight weeks. The chart below describes how to do this.

Trial each step for a few days if you or your child remain well. If symptoms develop, return to the last step tolerated.

  1. Begin with using butter, rather than dairy free spread.
  2. Try a slice of hard cheese with a low lactose content e.g. mature cheddar, double gloucester, emmental, gruyere or parmesan. If tolerated, increase up to your desired portion size
  3. Try a slice of semi-soft cheese such as brie, camembert or mozzarella. If tolerated, increase up to your desired portion size.
  4. Try a teaspoon of soft cheese such as Quark, Philadelphia, cottage cheese, fromage frais or ricotta. If tolerated, increase up to your desired portion size.
  5. Try a tablespoon of yoghurt or ice cream. Try 'live' versions first, if available. If tolerated, increase up to your desired portion size.
  6. Try cow’s milk (use a standard formula if your child is under 1)
    • begin with ¼ volume of cow’s milk + ¾ current milk substitute or formula
    • then give ½ volume of cow’s milk + ½ current milk substitute or formula
    • then give ¾ volume of cow’s milk + ¼ current milk substitute or formula

Individual tolerance

Once a diagnosis of lactose intolerance has been confirmed, those with a primary intolerance can begin to reintroduce small amounts of lactose. Each person can tolerate different amounts of lactose, and it is useful to experiment. For example, a person may develop symptoms after drinking a glass of milk but have no symptoms with a cup of tea containing milk.

As medicines contain only a small amount of lactose, they often do not cause symptoms unless you/your child is particularly sensitive. Likewise, foods suggesting they 'may contain traces of milk' are often tolerated well.

Hard cheeses, which have been aged for over 12 months, such as mature west country farmhouse cheddar, emmental and gruyere, contain only traces of lactose. Yoghurts containing live bacteria (probiotics) also have very low lactose content. You may find you/your child have/has no symptoms with these products.

Some people find consuming lactose-containing foods with a meal, rather than on their own, are better tolerated.

Calcium and vitamin supplements

While a child or young person is growing, it is important that they are getting enough energy, protein, vitamins and minerals. Dairy is an important source of these nutrients, particularly calcium, and it is important to include other sources of calcium while following a lactose free diet. Lactose free products contain the same amount of calcium as the standard versions.

If a calcium and/or vitamin supplement is required, your dietitian will advise you on an appropriate product and dose for you or your child.

The Department of Health recommends that all children under the age of five take a supplement containing vitamin D. Many suitable preparations are available over the counter at pharmacies and supermarkets. If your child is taking 500ml or more of an infant formula per day then they will not require a supplement, as the formula milk provides enough vitamin D. Please ask your dietitian or local pharmacist if you have any questions.

Who can I contact for further information?

Dietitian: ….............................................................................................

Contact number: 01223 216655

My Chart

We would encourage you to sign up for MyChart. This is the electronic patient portal at Cambridge University Hospitals that enables patients to securely access parts of their health record held within the hospital’s electronic patient record system (Epic). It is available via your home computer or mobile device

More information is available on our website.

Privacy & dignity

Same sex bays and bathrooms are offered in all wards except critical care and theatre recovery areas where the use of high-tech equipment and/or specialist one to one care is required.

We are smoke-free

Smoking is not allowed anywhere on the hospital campus. For advice and support in quitting, contact your GP or the free NHS stop smoking helpline on 0800 169 0 169.

Other formats

Help accessing this information in other formats is available. To find out more about the services we provide, please visit our patient information help page (see link below) or telephone 01223 256998. www.cuh.nhs.uk/contact-us/accessible-information/

Contact us

Cambridge University Hospitals
NHS Foundation Trust
Hills Road, Cambridge
CB2 0QQ

Telephone +44 (0)1223 245151
https://www.cuh.nhs.uk/contact-us/contact-enquiries/