Information for patients

Patient information leaflets

Cleft.NET.East resources are available online following the links below or via CUH patient information A-Z. Accessibility Tools offers this information in other languages, recited text and a range of accessible functions.

Information about Cleft.Net.East

• Introduction to the Cleft team | CUH
• The clinical nurse specialist service: Information for parents and carers | CUH

Cleft information

• CLAPA - The Cleft Lip and Palate Association (opens in a new tab)
• Returning to treatment resources | CLAPA (opens in a new tab)
• NHS Choices - NHS information on cleft lip and palate (opens in a new tab)
• Cleft lip | CUH
• Advice for parents/ guardians of children with an unrepaired submucous cleft palate (SMCP) | CUH
• Weaning advice for babies with cleft lip and / or palate

Dentistry

• Dental care, what do do in an emergency and dentist access questionnaire

Our clinics

• Addenbrooke's Hospital Combined Cleft Clinic | CUH
• Palate Investigation Clinic | CUH
• Please also see our selection of videos below.

Psychology

• Cleft Psychology Team | CUH
• Talking to your child about their cleft | CUH
• Guidance and support when children are teased and / or bullied | CUH

Research

• CRANE - Cleft Registration and Audit Network (opens in a new tab)
• Cleft Collective - Study of causes, treatment and impact of cleft lip and palate (opens in a new tab)

Speech

• First babble advice | CUH
• How is the palate involved in speech? | CUH
• Speech advice following palate repair | CUH

Surgery

• Preparation for primary cleft lip surgery | CUH
• Preparation for primary cleft palate surgery | CUH
• Feeding advice following cleft palate surgery | CUH
• Secondary speech surgery: preparation and recovery | CUH
• General information regarding all cleft surgery
• Alveolar Bone Graft (ABG) Surgery

Various

• Addenbrooke's Charitable Trust - Addenbrooke's charity (opens in a new tab)
• Operation Smile - Global cleft charity (opens in a new tab)
• Max Appeal - Supporting families affected by DiGeorge Syndrome, VCFS and 22q11.2 deletion (opens in a new tab)

Other resources