This study is exploring the impact of Covid-19 on the diagnosis, management, and health services for children and young people (under 16 years old) with a newly-diagnosed brain tumour in the UK.
If your child has been diagnosed with a new brain tumour (from March 1st 2019 to February 28th 2021), you (as a parent / guardian) as well as your child or young person can participate in this study. 'Healthcare services can be improved after learning from your experiences'.
Gaining information from children and young people as well as parents / guardians related to their journey with a new brain tumour will be helpful to improve services in the future.
If you decide to take part, a researcher will contact you directly to arrange a meeting with you to speak to you about your journey.
All the conversations are completely confidential and your name will not be mentioned in any written work.
Who can participate?
- Young people (under 16) who have recently been diagnosed with a brain tumour.
- Parents of the young people who have recently been diagnosed with a brain tumour.
Share your story
If you have taken part in the study, please fill out this form to share your experiences with us, and send us files.