The East of England Neurosurgery Network Patient Community Voice

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Hello and welcome.

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Good morning.

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Or a good afternoon, depending on when you're watching.

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My name is Daniela, and I'm the patient engagement

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lead for the East of England Neurosurgery Network.

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Thank you for taking the time to watch this video.

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Today, I'd like to share a short overview of what

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the Patient Community Voice Group is and how it fits into the wider work of our

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neurosurgery network here in the East of England.

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So let's dive in.

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The East of England Neurosurgery Network

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is a collaborative group of professionals working across the region.

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Our shared aim is to improve the quality of care

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and these patient experience, and reduce inequalities

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in how people access and experience neurosurgical services.

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A key part of achieving

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this is ensuring that patients

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and those close to them are part of the conversation.

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That's why we have created a dedicated workstream

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and we call it the Patient Community Voice.

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So we have covered these elements,

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so we are the East of England Neurosurgery Network.

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and I was just saying that our group is called

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Patient Community Voice, and my name is Daniela.

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So our approach is

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based on co-production, which means working together

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professionals and patients side by side.

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We often describe our model

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as a pyramid. At the base are the individual

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stories, and experiences that people bring.

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These are incredibly valuable.

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They help us understand what matters most

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and where there's room for improvement.

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From there, we look for themes and patterns,

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things that come up again and again.

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This work is done in partnership with patients helping to identify

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these key priorities.

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Then comes the co-design phase, where patients and professionals

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collaborate to develop practical solutions

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that can lead to real, lasting change.

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We've built flexibility

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in how people can get involved.

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So you can choose what works for you best.

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We have the Patient Community Voice as the center of what we do,

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and we have a patient community advisory group where patient

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representatives can join the Neurosurgery Network board

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meetings, for example.

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But we also have the Patient Community Partnership,

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which uses an approach called experience based co-design

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to help patients and professionals work together

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on key topics.

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You can also take part in

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patient community circles, which are similar focus groups

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that look at specific issues that patients have raised.

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We're currently working on a questionnaire

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co-designed by patients for patients

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to gather experiences from across the region.

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And we would like to include

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as many individualson this project as possible.

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from hospitals surveys or charity reports and other sources.

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So we bring in as many perspectives as possible.

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The outcomes we are aiming for are three.

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First, to build a genuine ongoing dialog with people who’ve used

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neurosurgical services. Second, to identify and

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implement quality improvement that makes difference.

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And third, to create models of best practice

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that lead to lasting change.

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And here comes the end.

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If you have an interest,if you want to be part in what we do

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or just learning more, getting involved, just ask questions,

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please feel free to email us using the email address

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Eoe.nn@nhs.net or you can scan the QR code that is

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showing here, and this will bring you straight to

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an expression of interest form where if you share your details,

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we can get in touch with you.

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Thank you again for watching, and I hope you have a great

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rest of your day.