The inflammatory bowel disease (IBD) patient panel is comprised of IBD staff, patients and carers at the hospital. The panel meets via the internet four times a year to share views and news about the hospital and so that patients and carers can provide feedback to the staff that care for them about how the IBD service is running. Staff share news about changes and events which would be of interest to IBD patients and their carers.
The Panel was set up in 2019 by staff that treat and support IBD patients at the hospital.
It is not intended to be a psychological mutual support group although it has a reciprocally caring, supportive and empathetic ethos. The IBD patient panel is keen to ensure that as diverse a range of patients can have a voice in the running of the IBD service as possible, even if you are unable to make an ongoing commitment to the group.
Join the panel
The IBD panel would like to welcome all adult patients at Addenbrooke’s and their carers to think about joining the IBD patient panel for the next meeting. Younger people, those of us with neurodiverse, mental health and / or with physical disabilities and people from households which live on very low incomes are currently under represented and would be very welcome.
If you think you or your loved-one might like to try and see if you would enjoy joining a meeting to see what it is like, please email the IBD patient panel and the volunteer secretary (who is also an IBD patient) will send you information about it.
Useful resources for IBD patients
- CUH patient and public involvement panel - For other ways patients can become engaged with the hospital
- MyChart sign up
- Joining the IBD registry
- Crohn’s and Colitis UK (CCUK) guide on treatments for IBD
National IBD patient support charities
Bucks NHS trust - Having a gastroscopy in hospital
Feedback and complaints
If you wish to share your feedback with us, please let us know your views here.
If you wish to make a complaint, please visit our 'make a complaint' webpage or the patients association website.