00:00:09,840 --> 00:00:11,160
Staff need to get that
00:00:11,160 --> 00:00:15,160
we see things they don't see
and that we know, things they don't know.
00:00:16,680 --> 00:00:20,840
We want to be asked how much we want
to be involved in decisions about our care.
00:00:21,720 --> 00:00:25,200
I want to be treated as the person
00:00:25,200 --> 00:00:29,200
I am more than a bunch of malignant cells.
00:00:31,840 --> 00:00:34,000
Co-production involves
00:00:34,000 --> 00:00:38,800
people from very beginning
so that they can identify the right question
00:00:38,800 --> 00:00:44,960
that need to be asked, then
commenting on something that is already decided.
00:00:46,080 --> 00:00:49,520
Co-production also sharing power between
00:00:49,520 --> 00:00:54,840
those who use as the service
and who those who delivers the service.
00:00:55,240 --> 00:00:59,240
Therefore, skills and resources
used appropriately.
00:01:01,800 --> 00:01:06,040
Co-production is a way of patients and clinicians
working together to improve care
00:01:06,360 --> 00:01:11,040
by acknowledging and using the experience
of patients to help inform service provision.
00:01:11,560 --> 00:01:14,040
It's a way of validating the lived experience,
00:01:14,040 --> 00:01:18,720
using the skills and valuing the assets of people
who have experienced cancer firsthand.
00:01:19,360 --> 00:01:23,520
It's about making sure that the patients, carers,
their families have a say
00:01:23,520 --> 00:01:27,520
and feel acknowledged and empowered during
and after any cancer treatment.
00:01:27,960 --> 00:01:31,960
It gives them the opportunity to be more
equally involved in decisions that affect them.
00:01:32,400 --> 00:01:34,880
Nothing about us without us.
00:01:34,880 --> 00:01:39,240
I was part of a big MDT
where we were trying to improve the outcomes
00:01:39,600 --> 00:01:43,840
and reduce length of stay,
but also improve the patient experience.
00:01:44,040 --> 00:01:47,360
So we were part of a big project
and in order to do this
00:01:47,360 --> 00:01:51,440
right at the very beginning,
we held some patient focus group meetings.
00:01:51,960 --> 00:01:55,800
So with all this information that we had collated,
we actually incorporated
00:01:55,800 --> 00:01:59,800
a lot of it into some of our proposals
in the business plan.
00:02:00,400 --> 00:02:06,000
These included things like a rehabilitation clinic
where patients were able to come and speak
00:02:06,000 --> 00:02:08,280
to a dietician, a physio
00:02:08,280 --> 00:02:12,280
and a specialist nurse to help
prepare them better for their operation,
00:02:12,520 --> 00:02:16,200
Talk to them about what
to expect during the inpatient stay,
00:02:16,200 --> 00:02:20,280
as well as what to expect
in the early few weeks after they're discharged.
00:02:21,560 --> 00:02:23,160
The thing about being a carer
00:02:23,160 --> 00:02:27,520
is that you're not the patient, you're
just an afterthought if you're a thought at all.
00:02:28,400 --> 00:02:30,520
But a cancer diagnosis for someone you care
00:02:30,520 --> 00:02:34,520
for deeply affects you
and that should be taken into account.
00:02:35,080 --> 00:02:38,480
I want to be told the options and understand
what's going on.
00:02:38,480 --> 00:02:41,720
I don't want to just be told
what's going to be done to me
00:02:41,720 --> 00:02:45,720
without understanding why
and what other options are available.
00:02:46,480 --> 00:02:51,360
Co-production is also patients and clinicians
working openly together to improve cancer care.
00:02:51,840 --> 00:02:56,640
Improvements are made to identifying needs
and helping to find solutions to those needs
00:02:57,240 --> 00:02:58,680
through participation in projects
00:02:58,680 --> 00:03:02,880
and strategies, patients
contribute to positive change at many levels.
00:03:03,840 --> 00:03:07,880
Co-production is an equal partnership
between patients and clinicians from addressing
00:03:07,880 --> 00:03:10,560
an issue to project design to delivery.
00:03:10,560 --> 00:03:12,480
All voices are valued.
00:03:12,480 --> 00:03:13,560
The outputs Cancer
00:03:13,560 --> 00:03:17,800
Patient Partnership Group has allowed me
to be involved in a number of valuable projects
00:03:18,080 --> 00:03:23,360
using my experience to help inform and improve
cancer care in the hospital and wider community.
00:03:23,800 --> 00:03:26,080
It has been precious time well spent.
00:03:27,120 --> 00:03:29,040
Co-production is about involving patients
00:03:29,040 --> 00:03:33,040
in the design of services and facilities,
not just sometimes, but all of the time.
00:03:33,960 --> 00:03:38,080
What we've found is that co-production isn't easy,
but when it works, it brings real benefits
00:03:38,080 --> 00:03:40,360
to both patients and staff.
00:03:40,360 --> 00:03:44,440
For example, we involve patients in the design
of our new oncology outpatient facility,
00:03:45,000 --> 00:03:49,000
and the result of that is that design
much more closely meets the needs of both groups.
00:03:49,440 --> 00:03:52,960
So co-production gives us confidence
that our service offer is based
00:03:52,960 --> 00:03:56,960
on what our patients actually want
and is co-designed and delivered with.
00:03:57,360 --> 00:03:58,880
A really good example of that is it.
00:03:58,880 --> 00:04:03,280
Our patients asked us to write
our outpatient letters to them and copy the GP
00:04:03,560 --> 00:04:05,520
rather than the other way round?
00:04:05,520 --> 00:04:06,840
And the result of that
00:04:06,840 --> 00:04:10,000
is that the letters are much clearer
and much more useful for the patients
00:04:10,000 --> 00:04:12,600
as a summary of what
they've been through in clinic.
00:04:12,600 --> 00:04:15,680
And in fact the piece have also found them
much more useful as well.
00:04:16,640 --> 00:04:20,640
Here at SIU we have a very active cancer
patient partnership group
00:04:20,640 --> 00:04:23,880
member Cicero Cancer Board,
and they challenge and support
00:04:23,880 --> 00:04:27,880
members of the board to deliver
and improve our services for cancer patients.
00:04:28,720 --> 00:04:32,360
What we found is that co-production isn't easy
and in fact if it is easy, it
00:04:32,360 --> 00:04:34,040
probably isn't working very well.
00:04:34,040 --> 00:04:37,200
But when it works, it's brilliant
for all involved.
00:04:37,200 --> 00:04:41,320
We are just like you staff
the patients, patients and staff.
00:04:41,720 --> 00:04:45,720
We want you to take a genuine interest
in understanding,
00:04:47,160 --> 00:04:52,960
talk with us, listen to what we have to say
and tell us about yourselves to.
