The information on this page is designed to provide patients with:

 

A B C D E F G H I J K L M N O P Q R S T U V W X Y X

A


Asthma

Severe Asthma Service (also see respiratory

In line with national NHS guidelines, many of our appointments have been moved to telephone appointments. You will receive notification about this.

Access to the hospital is likely to change on a day-day basis as increasing restrictions are put in place to minimise person-person spread of the virus. We recommend you check the home page of the Trust website for the latest update.

The biologics delivery service will continue, but if you routinely attend for this, you may notice a change to the organisation of outpatients. Visits will be kept as brief as possible.

You should continue to take your medication, including prescribed dose of oral steroids, unless otherwise instructed. Abrupt reduction of oral steroids such as prednisolone without medical supervision can be dangerous, and severely worsen asthma control.

You should maintain ready access to, and follow your personalised asthma action plan, as you normally would.

Telephone appointments/consultations

In readiness for a telephone appointment, please have your peak flow meter and medication including inhalers to hand.

If you are unable to be available for the appointment please call the team on 01223 349 410

Useful links:

Current government advice on self-isolation

Current Asthma UK coronavirus site

Inhaler advice video


Audiology

Due to the increasing pressures on the NHS caused by COVID-19, the local NHS needs to ensure that the maximum possible inpatient and critical care capacity is available in our hospitals to respond to this pressing demand.

This means that the local NHS has made the decision to postpone all non-essential outpatient appointments and planned procedures and operations until further notice, starting on 20 March 2020. We are planning for this to be for a period of at least three months.

This will include our walk-in repair services, however, please be aware that we will still operate a postal repair service. If you require this service, please send your hearing aid(s) in appropriate packaging, with your brown record book and a stamped self-addressed envelope (with a large letter stamp) for return to you.

Our address is:

Audiology Clinic 10
Box 94
Addenbrooke’s Hospital
Hills Road
Cambridge
CB2 0QQ

Information on hearing aid maintenance can also be found by searching C2Hear Online on Google or YouTube, or in the patient information leaflets on our website.


B


C


Cancer

Important Operational Changes to Cancer Services  

Location for receiving chemotherapy

A large part of the Oncology Day Unit still remains an assessment area for cancer patients. Therefore a small part of the Oncology Day Unit has reopened for some treatments. All patients requiring chemotherapy or treatment will be contacted and booked to either Oncology or Haematology Day Unit.  

The Haematology Day Unit is in a separate block opposite the main entrance to the hospital. You do not need to enter the main hospital. From the main hospital entrance as you face it turn right and follow the walk-way all the way down to the Haematology Day Unit entrance. 

Timing and location of the blood test service

Blood tests are now being offered again in Oncology & Haematology Outpatients from Monday, 6th July.  The previous services offered at the Nuffield Hospital and Clinic 43 are closed. In order to maintain social distancing in the waiting area an appointments system will be operating.  For bloods prior to face to face appointments, patients can attend the clinic for bloods 1 hour prior to their appointment time without booking. Following their blood tests, patients may then be asked to leave the area in order to manage numbers in the waiting area; they can then return to the waiting area 10 minutes prior to their clinic appointment time.  For bloods prior to a phone or video consultation, patients will require an appointment for bloods and this will be arranged for 24-72 hours prior to their booked consultation  A member of the Administration team will call to arrange the appointments. If you have any queries please call 01223 216551.  

Imaging Services  (X-ray, CT, MRI, PET, Ultrasound)

Due to COVID19, the Imaging Department is experiencing a reduction in its normal capacity. This is to keep patients and staff safe. Extra resources to support are being arranged. Patients may be sent appointments to be scanned at other locations such as independent hospitals and vans. The Department is continuing to see patients for urgent diagnostic tests, but there are waiting times for surveillance scans. It is really important that patients accept appointments at other locations as the Department does not know when patients can be booked to attend Addenbrooke’s Hospital.

To reduce risks for patients waiting for surveillance scans, the Imaging Department and Clinical Teams are continually reviewing patients on waiting lists and prioritising scans for those at higher risk of a cancer recurrence. Due to numbers involved it is not possible to keep all of those waiting informed of their likely scan date and time. Please feel assured that you will receive a date at a time in the future; however, if you become concerned contact your clinical team for information and support.   

 

Cancer Support Team

Due to the current Coronavirus (COVID-19) outbreak the Cancer Support Team has temporarily altered how it supports patients during their experience of cancer.

The team can be contacted Monday to Friday, 09:00-16:00, on 01223 274801. We are expecting a higher than average number of calls, so please leave a message if you cannot get through and we will endeavour to call you back as soon as possible.

The Macmillan Cancer Support Team at Addenbrooke’s can now be contacted online and can support you with any non-medical issues you may be dealing with as a result of a cancer diagnosis or the cancer treatment you are going through. See https://www.cuh.nhs.uk/cancer-services/support/cancer-support-online. You can also contact the team by email on add-tr.Information-Support@nhs.net. This account is checked daily and we will make every effort to respond as quickly as possible to any queries.

For any clinical enquiries, please contact your clinical team as normal.

For financial or benefits advice, please contact the Macmillan benefits advisors on 0345 600 6257 or macmillanbenefits@suffolk.gov.uk

For further support you can access the main Macmillan website on www.macmillan.org.uk or contact them on 0808 808 0000. 

Government advice for extremely vulnerable people

The UK Government has issued guidance on shielding and protecting people defined on medical grounds as extremely vulnerable from COVID-19.    

Changes announced for shielded patients

2.2 million people who have been self-isolating in England will no longer need to shield from Saturday, 1 August. There will also be a gradual relaxing of the advice from Monday, 6 July. Many may need help and support to transition out of shielding and move towards a new way of life. A Countywide Hub will be there to provide that support. If you need support and don’t have friends, family or neighbours to help them, please visit www.peterborough.gov.uk/coronavirus  or www.cambridgeshire.gov.uk/coronavirus  or call 0345 045 5219.  District and City Councils also have information on their websites about local hubs and how people can get in touch and access help and support

This includes people:

  • with cancer who are undergoing active chemotherapy;
  • with cancer who are undergoing active chemotherapy or radical radiotherapy for lung cancer;
  • with cancers of the blood or bone marrow such as leukaemia, lymphoma or myeloma who are at any stage of treatment;
  • having immunotherapy or other continuing antibody treatments for cancer;
  • having other targeted cancer treatments which can affect the immune system, such as protein kinase inhibitors or PARP inhibitors;
  • who have had bone marrow or stem cell transplants in the last 6 months, or who are still taking immunosuppression drugs.

Helpful documents

One Cancer Voice Guidance on COVID-19 for Cancer Patients 

Helpful links

Frequently Asked Questions – generated by the Cancer Patient Partnership Group

Macmillan Cancer Support has specific information on the coronavirus for cancer patients and has developed a COVID19 Offer.  

It includes:

Teenage Cancer Trust

Cancer Research UK also has specific information for cancer patients. 

It includes:

  • How can cancer and treatment weaken immunity?
  • What’s the advice for people with cancer (who have no symptoms of coronavirus)?
  • What do I do if I have symptoms?

Cancer Care Map - Search by postcode for cancer support services in your area.

East of England Cancer Alliance  - Frequently Asked Questions in response to COVID-19 for cancer patients


 CASEE 

COVID-19 Statement from CASEE


Children – see paediatrics


Crohn’s and Colitis

We are working with Crohn’s and Colitis UK and British Society of Gastroenterology to keep the most up-to-date information in the public domain.

For the latest advice please visit the Crohn’s and Colitis UK website.


F


Fractures

To help ease pressure on the NHS, many of our facture/elective clinics are being moved to telephone clinics. If your appointment has changed then you will be contacted by us, otherwise you should still attend.

In the meantime, you can find helpful advice on how to best manage your condition on the following website: www.fractureinfo.co.uk


H


Haematology - see Cancer


I


IBD – see Crohn’s and Colitis


K


Kidney (See renal)


L


Liver

Please visit the British Liver Trust website for our latest advice on Coronavirus (COVID-19), which includes all our frequently asked questions about the disease for people affected by a liver condition (including those who have had a liver transplant).

For additional information please visit https://easternliver.net 


O


Obesity

Our Obesity Team is currently experiencing an unprecedented volume of calls. If you need to contact the team for information, please consider emailing  rebecca.richards@addenbrookes.nhs.uk

In light of coronavirus (COVID-19) we have made the following adjustments to our upcoming clinics in order to limit footfall through the hospital and to offer you some protection by keeping them at home as much as possible.

Being seriously overweight (a body mass index (BMI) of 40 or above) increases your risk of severe illness from coronavirus (COVID-19) and so you must be particularly stringent in following the social distancing measures. These are steps you can take to reduce social interaction between people. This will help reduce the transmission of coronavirus (COVID-19).

• Avoid contact with someone who is displaying symptoms of coronavirus (COVID-19). These symptoms include high temperature and/or new and continuous cough

• Avoid non-essential use of public transport when possible

• Work from home, where possible. Your employer should support you to do this. Please refer to employer guidance for more information

• Avoid large and small gatherings in public spaces, noting that pubs, restaurants, leisure centres and similar venues are currently shut as infections spread easily in closed spaces where people gather together

• Avoid gatherings with friends and family. Keep in touch using remote technology such as phone, internet, and social media

• Use telephone or online services to contact your GP or other essential services

Everyone should be trying to follow these measures as much as is practicable.

All routine obesity appointments clinics from Monday 16th March will be replaced with a telephone consultation.

Please keep your clinic appointment time free, and you will be called within a three hour window of your original appointment time. 

We will be postponing assessments and new starts for our Intensive Weight Management Programme.   Bariatric education sessions are on hold for the time being. Surgical, medical and Intensive Weight Management Reviews will be modified but maintained as part of a telephone consultation.

Screening for coronavirus will NOT be undertaken by the Obesity Clinic. It is undertaken via the NHS 111 service.

We thank you for your patience during this time; we will update you all when new information is available.

Please take time to read the guidance on the NHS 111 website in relation to the COVID-19 infection.


Oncology - see Cancer


P


Paediatrics

Please click here to read a press release from Diabetes UK regarding type 1 diabetes awareness in children during Covid-19 lockdown. 


Paediatric Cystic Fibrosis and Respiratory Team

Our Cystic Fibrosis and Respiratory Team is currently experiencing an unprecedented volume of calls. If you need to contact the team for information, please consider emailing: jo.bridge@addenbrookes.nhs.uk

You will now be aware that your child or young person should be shielded according to the latest government guidance (https://www.gov.uk/government/publications/guidance-on-shielding-and-pro...)

In light of coronavirus (COVID-19) we have made the following adjustments to our upcoming clinics in order to limit footfall through the hospital and to offer your young person some protection by keeping them at home as much as possible.

Cystic Fibrosis and Lung Defence

All routine CF and Lung Defence clinics and Annual Reviews from Monday 16th March will be replaced with a telephone consultation.

Please keep your clinic appointment time free, and you will be called within a three hour window of your original appointment time. This excludes patients with Thursday Annual Review appointments who will be called Thursday afternoons between 14:00 and 17:00. Telephone clinics will also have SOS slots for urgent enquiries. These slots will be allocated according to clinical need. You may also be asked to provide a cough swab or sputum sample from your young person and these will be posted out to you for return by post.

During the telephone consultation you will have the opportunity to speak to any or all of the CF team as is deemed necessary.

We will be postponing Annual Review tests for the time being. Annual Review consultations will be modified but maintained as part of a telephone consultation.

If your child or young person with CF or lung problem becomes unwell with a cough and/or fever, we would advise that in addition to initiating NHS isolation measures:

• Standard care is maintained

• Oral antibiotics are commenced 

• A cough swab or sputum should be sent in for (CF) culture as you would normally do

• The Respiratory and CF team should be made aware that your young person is ill via the usual channels

• It is crucial that chest physiotherapy is maintained 

Screening for coronavirus will NOT be undertaken by the CF Clinic. It is undertaken via the NHS 111 service.

A hospital review by the Respiratory Team is warranted if the child remains symptomatic after 1 week of oral antibiotics and/or are deteriorating i.e. worsening cough, +/- shortness of breath, +/- chest tightness, +/- chest pain, +/- increased sputum production. 

If you bring your young person to Addenbrooke’s, they may be asked to wear a mask. If they do require admission, they will likely require isolation for the first 48 hours as a minimum. One parent will be allowed to stay with their child in the isolation ward.

If your young person needs a portacath flushed that cannot be undertaken by the Community Nursing Team, we will make appropriate arrangements for you.

We thank you for your patience during this time; we will update you all when new information is available.

Helpful links

Please take time to read the latest UKCFMA statement on the CF Trust website www.cysticfibrosis.org.uk .

Please take time to read the guidance on the NHS 111 website in relation to the COVID-19 infection.

Respiratory Team 

Advice and information for children seen in the paediatric respiratory clinics: 

• Travel within the UK is unrestricted. If you require foreign travel advice, we advise you consult www.gov.uk/foreign-travel-advice.

• Hand hygiene should be maintained with good handwashing techniques, soap and water. Alcohol gel is acceptable.

• Flu like symptoms should be treated as per your asthma action plan or respiratory care plan (if you have one). 

• If you think your child may have symptoms due to coronavirus (COVID-19) then please follow the advice on the NHS website and complete the NHS 111 form

• Surgical masks do not provide heightened protection for you or your child. However, if your child is symptomatic they may be asked to wear one to protect others from getting an infection


Paediatric neuroimmunology service 

The service has been writing to parents and carers of children on immunosuppressant disease modifying therapies to offer advice and guidance.

Patients with the following conditions should all receive letters:

• Multiple sclerosis and are on three weekly subcutaneous Beta interferon (Rebif) injections

• Multiple sclerosis and have received Alemtuzumab

• Multiple sclerosis and are on Ocrelizumab.

• Autoimmune encephalitis and have had Rituximab treatment

• MOG positive transverse myelitis / optic neuritis (Neuromyelitis optica spectrum disorder NMSOD) and are on disease modifying treatment

• Autoimmune encephalitis and are on disease modifying treatment

Our understanding of coronavirus is developing rapidly but there is concern that a variety of immunosuppressive therapies used in the treatment of a range of neurological disorders might increase the severity of coronavirus infections.

The ABN MS and Neuroimmunology Advisory Group has prepared advice on the use of MS treatments based on current knowledge. This guidance will be kept under review as our understanding of the virus develops. Further guidance on the use of other immunosuppressive therapies for a range of immunological conditions will be issued shortly. 

To view the guidance please click here.

Guidance considered:

Advice from the Italian MS Society

European Society for Blood and Bone Marrow Transplantation

The Encephalitis Society


Paediatric Rheumatology 

Advice for paediatric rheumatology patients with regard to Coronavirus (COVID-19)

A coronavirus is a type of virus, which presents with flu-like symptoms including a fever, a cough, or difficulty breathing. The current evidence suggests that most cases are mild, even in children and young people who are immunosuppressed.  Like the common cold, coronavirus (COVID-19) infection usually occurs through close contact (within 2 meters for more than 15 minutes) with a person with coronavirus via cough, sneezes or hand contact. 

  • Wash your hands more often than usual, for 20 seconds and whenever you:
  • get home or into work or school
  • blow your nose, sneeze or cough
  • eat or handle food
  • It's important to use soap and water or a hand sanitiser.

Further government advice is available here: https://www.nhs.uk/conditions/coronavirus-covid-19/

Public Health England (PHE): https://www.gov.uk/guidance/coronavirus-covid-19-information-for-the-public

If your child develops symptoms and you are concerned this may be coronavirus:

If your child is on regular medications of methotrexate, mycophenolate mofetil, azathioprine, leflunomide or biologics (eg etanercept, adalimumab, tocilizumab, infliximab, anakinra, abatacept):

  • If in contact with suspected infection – continue medications as usual
  • If mild viral cold symptoms develop - continue medications as usual
  • If unwell with a fever, stop medication, follow PHE advice and self isolate and notify your team who will advise when to restart treatment
  • If persistent cough and unwell, stop medication, follow PHE advice and self isolate and notify your team who will advise when to restart treatment
  • If persistent cough but well, follow PHE advice and self isolate, continue medication 
  • If on steroid treatment: do not stop steroids abruptly; continue them unless advised differently by your health professional team. 

Being on any of the above medications does affect your child’s immune system. However there is national agreement, based on the scientific evidence, that these medications alone do not put your child at high risk of severe infection were they to catch COVID19. If your child is on one or more of the above medications and also has other health conditions such as lung or heart problems they may be in the higher risk or ‘vulnerable group’ requiring shielding. Being on steroid medication (‘prednisolone’) puts your child into the vulnerable group, requiring shielding. We have carefully reviewed all the patients in our CHEERS service and you will have received a letter from us informing you that you should ‘shield’ your child if they are in a vulnerable group

We have contributed to the production of a national document explaining who should be shielding, which is available on the Children with Arthritis (CCAA) website following the link below.

https://www.ccaa.org.uk/wp-content/uploads/2020/04/Paed-RheumOphth-Risk-Stratification4Families-UPDATE-10042020.pdf

The Government is currently advising people who have already been asked to shield to continue ‘shielding’ until 30 June 2020, although they have recently updated the advice to say that a person shielding may now go outside, and meet one other person. They are regularly monitoring this position.

https://www.gov.uk/government/publications/guidance-on-shielding-and-protecting-extremely-vulnerable-persons-from-covid-19

Social distancing advice

For the rest of us, including children and young people in our service on immune modifying medication the government has now relaxed some of the previously strict measures but has continued to recommend we should only leave our homes if it is absolutely necessary. 

https://www.gov.uk/government/publications/staying-alert-and-safe-social-distancing

Return to school

The government is planning a phased return to school. For now this means that children in nursery, reception, year 1 and year 6 who are not shielding are able to return to face to face education, if their school can provide an environment that adheres to the social distancing recommendations. The paediatric rheumatology specialists nationally are happy to support this recommendation. At present families are able to decide if they would like their child to attend and there are no fines or penalties if they remain at home. 

Use of Non-steroidal anti-inflammatory drugs (NSAIDs) e.g. Ibuprofen

There were early media reports regarding the use of NSAIDs in relation to COVID-19. These have been thoroughly investigated and the resulting report is in the link below:

https://www.gov.uk/government/news/commission-on-human-medicines-advice-on-ibuprofen-and-coronavirus-covid-19

Taking NSAIDs does not increase the risk of catching the virus

If you think your child needs the medication for pain or swelling you should continue

For treatment of possible COVID-19 symptoms (fever and cough), paracetamol should be used first, if it is suitable for your child to take this medication but ibuprofen can be used in addition or as an alternative. 

Further advice

If you need further advice about your medication or you become unwell and the doctor looking after you needs advice, please contact the paediatric rheumatology advice line at the hospital where you have your specialist appointments, during working hours (8:30-16:00, Monday to Friday).

Addenbrookes Hospital: 01223 254988

Norfolk and Norwich Hospital: 01603 287911

Additional resource:

A helpful slide overview put together by UK and European paediatric rheumatology colleagues can be found here: https://wordday.org/wp-content/uploads/2020/03/WORDday2020-CORONA-PReS-guidelines.mp4

and the British Society for Rheumatology (advice for professionals): https://www.rheumatology.org.uk/News-Policy/Details/Covid19-Coronavirus-update-members

Specific advice relating to hospital attendance

  • Outpatient appointments

Regarding your child’s out-patient appointment at Addenbrookes, Jenny Lind, and our paediatric rheumatology outreach clinics:

We are now able to see just a few children in person in the clinic environment again. We are prioritising urgent cases where there may be a flare up of disease or new disease and it is important for us to see your child in person. Other appointments will be telephone appointments unless it is essential to examine your child. The outpatient team will contact you to confirm whether your appointment is by phone or in clinic. If you have not had contact prior to your appointment, please phone the clinic to confirm the arrangements. If you are attending clinic, only one parent can accompany your child (and no siblings). 

If you think your child may have COVID-19 or is unwell, please do not bring them to their routine hospital appointment, but contact your team to let them know you cannot come.

  • Routine blood monitoring 

In order to further reduce hospital attendance we will increase the interval between blood tests for certain patients on disease modifying anti rheumatic medications (DMARDs) and biologics to 3 months. This extension will only apply to those who have been on these medications for at least 6 months and have not had an abnormal result in the last 3 months.

  • Booked infusions of medications

These will be going ahead, but may not be in the usual place. We are making arrangements to keep you as separate from other patients as possible. Please confirm the venue and procedure for your infusion before you attend. Hospital policy again allows one parent to accompany your child and no siblings.

If you have to self- isolate due to suspected COVID 19 infection in your home, you should not attend for your infusion. Please contact us to defer the infusion date to after the isolation period. 

PLEASE NOTE ADVICE IS CHANGING ON A FREQUENT BASIS AND WE WILL CONTINUE TO PROVIDE THE MOST UP TO DATE RECOMMENDATIONS FOR OUR PATIENTS AS BEST WE CAN.


Paediatric Long-Term Ventilation (LTV) 

In view of the escalating concerns of COVID-19 the Paediatric Long-Term Ventilation (LTV) team at Addenbrooke’s Hospital are:

  • Informing parents/guardians of the changes to our services during the COVID-19 pandemic. 
  • Providing information about shielding the child and family during the COVID-19 pandemic.

Communication with the LTV team at Addenbrooke’s 

Due to the demand on the NHS and resources we are having to change the way we communicate with our patients to ensure we can still support you during the COVID-19 pandemic.  With this mind we have made some changes to our usual methods of communication. 

Telephone contact

  • At present response to voicemail and emails may be slower.  Therefore please only leave non-urgent communication with us via the LTV email account (enter email address).  We endeavour to reply to your non urgent communication within 24 hours . 
  • If the request is urgent please follow your usual pathways of escalation of care via your local services. 

Changes to elective hospital care for the LTV patient group 

Outpatient appointments 

  • For the foreseeable future will be doing telephone consultations and where possible this will still be in a Multi Disciplinary Team (MDT) format including a LTV consultant, LTV Clinical nurse specialist, Ear Nose Throat Surgeon, ENT CNS, Speech and Language therapist, and at times Physiotherapy. 
  • The time slot you have been given for your outpatient appointment will be the same time as your telephone consultation.  Where possible please be available for the time allocated to ensure we can all review your child over the phone as a MDT. 

 Sleep Studies and elective admission for LTV

  • All elective in-patient sleep studies have been postponed until further notice. 
  • Elective admissions for children that require ventilation to be commenced are being reviewed on a patient by patient basis. If you are awaiting this type of treatment then the LTV will contact you individually to inform you of a plan. 

Escalation plans and ventilator prescriptions 

One of the LTV team will contact you regarding your child’s escalation plan and ventilation prescription.  We will ask you if it is up-to-date and if all relevant healthcare professionals have up-to-date copies (including GP, Community nurses, local hospital and care package).  

Shielding of vulnerable patients for 12 weeks advice from Government

There is new government guidance that came to effect as of March 21 2020. If your child is under the LTV team at Addenbrooke’s then it is very likely they are being classed as part of the vulnerable group. We would advise that you follow the guidance on shielding from COVID-19. If you would like to discuss this further please email the LTV team. More information can be found here.

Consumables and stock at home 

  • Please sort through and utilise all your stock at home, especially ventilation circuits. If required (in extreme circumstances) use the ventilation circuit for slightly longer than usual to ensure you have enough stock at home. 
  • Keep in close contact with your community team regarding ongoing stock needs. 
  • Contact Addenbrooke’s LTV team via email if you require a non-invasive ventilation mask to be sent out to you. All other stock should be available via community nurses. 
  • Contact BOC if you have concerns regarding your oxygen deliveries and stock. 

Cleaning of equipment

Please ensure you are cleaning masks, circuits and other equipment as per usual manufacturers’ guidance.  If you require further information regarding cleaning please highlight this when the LTV contacts you regarding escalation plans.  Alternatively contact the LTV team via email for instructions on cleaning. 

LTV children at home with care packages 

For children that have care packages, COVID-19 poses a risk for both children and adults.  The concern we have is also for the care packages staffed by adults and the parents of the children.   

The Clinical Commissioning Group (CCG) for your local area should be coming up with contingency plans if your care team staff become unwell. Keep in contact with your Community nursing team about what plans are in place. 

In the meantime we advise the following steps: 

  • Identify if there are any appropriate family members that could be upskilled or provide support to you and your family. 
  • With the possible reduction in carers, try and identify any times in your child’s 24 hour care needs that require a carer, or support from others.  If required, have a conversation with your care provider to plan for a worst case scenario and identify times in the day or night that are crucial to have staff to support you. 
  • Try and look at you child’s routine care needs and move to different times in the day so any additional carers/staff that may not know all your child’s care needs can be supported by trained members of child’s family.  Include any care needs that can be performed in the day time rather than the night time. 
  • If new staff members are called in to look after your child they might not be trained in all aspects of your child’s care needs.  Therefore, be mindful and open to what skills they can provide and what skills parents/guardians might need to provide alongside a new carer. 
  • Look after your own health needs as a parent/carer to ensure that you can provide care when needed and look at ways within your family dynamic that you may need support in order to prevent parent/carer fatigue. 

Pompe disease

Patients with Pompe disease  - a very rare (inherited) genetic disorder - are at a really high risk with COVID-19 in view of their neuromuscular breathing difficulties -  many are already using artificial ventilation. 

The video below is an inspirational look at how people around the world are coping and trying to stay well. 

https://www.youtube.com/channel/UCTIgBCHotaPy0LrMVAD1QWQ

For more information visit www.worldpompe.org/


Pregnant and postnatal women 

All the latest information for pregnant and postnatal women including appointments, attending the hospital and infant feeding is here.

Please familiarise yourself with our latest visitor policy which is here


R


Renal 

For clear and sensible advice for patients with renal disease (including transplant and dialysis) please visit the Kidney Care UK website: https://www.kidneycareuk.org/news-and-campaigns/coronavirus-advice/


Respiratory 

Individuals with chronic lung conditions such as COPD, bronchiectasis and asthma are more at risk of the effects of coronavirus (COVID-19).

To help reduce risk: 

• All non-urgent lung function testing has been cancelled

• All non-urgent face to face clinic appointments will take place via telephone 

Please keep your clinic appointment time free, and you will be called by one of the clinical team within a three hour window of your original appointment time.  

You should follow current government advice on self-isolation. If you become unwell with a cough and/or fever, we advise that you follow your standard plan for exacerbation (infection) management including:

• Continuing your standard medicines 

• If applicable, follow the advice from your previously discussed management plan. This may include commencing antibiotics, nebulisers or steroids. If you fail to improve, please seek medical attention.

• If you usually have a standby course of medications, ensure you have these available.

The respiratory team cannot arrange testing for COVID-19, which is undertaken as per national directives.

For some patients e.g. those with severe asthma receiving biological therapy, the specialist team will inform you on the transition to “home care.”

We thank you for your patience during this time; we will update you all when new information is available.


Rheumatology 

We have prepared a patient information leaflet for patients who are currently taking immunosuppressive medications for rheumatology. Please click here


S

Severe Asthma Service - See Asthma

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