Paediatric rheumatology research

Staff profile block: 

Petra Tucker

Research nurse

We are dedicated to high quality medical research in the knowledge that this is the principle way that improvements in care and in outcomes can be achieved.  Children and young people who come into our service will be given the opportunity, where eligible, to take part in the following open research studies (in Norwich and/or Cambridge).

SPARKS CHARMS

A study of the immunological and genetic mechanisms of response, and psychological response to, standard disease management in juvenile idiopathic arthritis (JIA) (juvenile arthritis, genetics and response to medication)

APTITUDE

(JIA uveitis and tocilizumab)

BCRD Biologics for Children with Rheumatic Diseases

The Extended Biologics Study. The long-term Safety and Efficacy of Biologic Therapies in Children with Rheumatic Diseases

BSPAR ECS

British Society for Paediatric and Adolescent Rheumatology Etanercept Cohort Study. The long term safety and efficacy of Enbrel for children with JIA

JIA WebParc

Evaluation of a website for parents of children with juvenile idiopathic arthritis

Closed studies

BENDY

Multidisciplinary intervention for treatment of BJHS in childhood

EMBIC

Experiencing Multidisciplinary treatment of Benign joint hypermobility

SYCAMORE

(JIA uveitis and adalimumab)

MYPAN

Mycophenolate mofetil compared with standard therapy for children and young people with vasculitis

In set up

UK JSLE

Juvenile-onset Systemic Lupus Erythematosis Cohort Study and Repository: Clinical Characteristics and Immunopathology of Juvenile-onset

JDCBS

Juvenile Dermatomyositis Cohort Biomarker Study and Repository